Fundraiser by Meghana Relkuntwar : Please help Vihaan with life saving gene
A few words from Meghana Vihaan Akulwar, my 15-month-old nephew, has been diagnosed with a rare (1 in 10,000) genetic disorder - Spinal Muscular Atrophy (SMA2). SMA affects the nervous system and muscle control of the body. If untreated, his quality of life will significantly deteriorate and may result in fatality. He will not be able to do things that most have taken for granted - sitting, walking and even breathing! Vihaan's only hope is a drug called “Zolgensma '' which needs to be administered before he turns 2 yrs. While Zolgensma is a miracle drug, at its current price of $2.1 Million, it is out of reach of Vihaan’s family even if they exhaust all their funds. This plea for help is difficult and humbling, but we believe this will give Vihaan a fighting chance against SMA! ...